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The 'Spinal Cord Injury Priority Setting Partnership' (SCI PSP) has been working closely and successfully with people with Spinal Cord Injury, Cauda Equina Syndrome and Transverse Myelitis, their carers, health and social care professionals and the wider community. This partnership was seeking to identify and prioritise the most important research questions for these three medical conditions, generally referred to as 'Spinal Cord Injury' (SCI). The outcomes of this partnership - a 'Top 10' of the most important SCI research questions - will enable researchers to address topics that are important to the wider SCI community. The Process 1. Bringing together all Stakeholders: The SCI PSP steering group made up of people with SCI, carers and healthcare professionals first met in April 2013. A protocol outlining the aims, objectives and methods of the partnership was finalised in June 2013 and can be downloaded here. 2. Question gathering:a large scale survey was conducted between September and December 2013 for anyone with an interest in spinal cord injury to submit potential research questions. 3. Sorting: Questions gathered in the previous stage were sorted and grouped into topic areas by the SCI PSP Information Manager, then checked against previous research to see if they had already been answered. 4. Prioritising: Once all questions and true uncertainties had been gathered and sorted, a second Survey was launched to identify which of all these questions were most important to those with an interest in spinal cord injury.  This Prioritisation Survey was conducted between 22nd April and 31st May 2014.  5. Narrowing down to a 'Top 10': A Final Prioritisation Workshop to discuss and rank the top 25 questions from the survey was held on Saturday 5th July 2014. Attendees, including people with a SCI, carers, patient representatives and healthcare professionals,  were able to express their views, hear different perspectives and think more widely about SCI to ultimately identify the 10 most important research questions. 6. Announcing the Results: the 'Top 10' research priorities were formally announced on 1st October 2014 and are shown on the "Top 10 Research Questions" page of this website.
Introduction
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The 'Spinal Cord Injury Priority Setting Partnership' (SCI PSP) has been working closely and successfully with people with Spinal Cord Injury, Cauda Equina Syndrome and Transverse Myelitis, their carers, health and social care professionals and the wider community. This partnership was seeking to identify and prioritise the most important research questions for these three medical conditions, generally referred to as 'Spinal Cord Injury' (SCI). The outcomes of this partnership - a 'Top 10' of the most important SCI research questions - will enable researchers to address topics that are important to the wider SCI community. The Process 1. Bringing together all Stakeholders: The SCI PSP steering group made up of people with SCI, carers and healthcare professionals first met in April 2013. A protocol outlining the aims, objectives and methods of the partnership was finalised in June 2013 and can be downloaded here. 2. Question gathering:a large scale survey was conducted between September and December 2013 for anyone with an interest in spinal cord injury to submit potential research questions. 3. Sorting: Questions gathered in the previous stage were sorted and grouped into topic areas by the SCI PSP Information Manager, then checked against previous research to see if they had already been answered. 4. Prioritising: Once all questions and true uncertainties had been gathered and sorted, a second Survey was launched to identify which of all these questions were most important to those with an interest in spinal cord injury.  This Prioritisation Survey was conducted between 22nd April and 31st May 2014.  5. Narrowing down to a 'Top 10': A Final Prioritisation Workshop to discuss and rank the top 25 questions from the survey was held on Saturday 5th July 2014. Attendees, including people with a SCI, carers, patient representatives and healthcare professionals,  were able to express their views, hear different perspectives and think more widely about SCI to ultimately identify the 10 most important research questions. 6. Announcing the Results: the 'Top 10' research priorities were formally announced on 1st October 2014 and are shown on the "Top 10 Research Questions" page of this website.
Introduction
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